Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

Site Index

What is EB?

2104 revised classifications of EB

Top 10 things new EB parents need to know from the very start

What friends and family need to know

Hospital and Surgery Info

Pain Management Recommendations 

The do’s and don’t's when it comes to an EB baby in the hospital. 

Recommend Blood Work for those with EB 

EB Medical Directory 

For information on wound care, and wound care products.

How we do bath/dressing changes 

EB friendly baby products and gear (including diapers, and clothing)

Information on Acid Reflux

Our experience with G-Tubes

Blended Diets (NEW!)

Our experience with Circumcision

EB and Airway Issues 

Common Complications of EB

To learn about SSI and Disability and where to apply  

To locate on-line support groups and other EB  organizations that provide support, promote
awareness and educate others, click here. 

The genetics and statistics of EB    

To learn more about me and how EB affects my life, click here.  

To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.    

No comments:

Post a Comment