EB Awareness Week: Because of EB.....

Because of EB, I have a wonderful, thoughtful, pretty stubborn but independent, 10 yr old daughter

Because of EB, I have my own personal guardian angel

Because of EB, I have a loving, smart and giving 6 year old daughter

Because of EB, I have a happy, energetic, eager-to-learn almost 5 yr old daughter

And because of EB, I have a very hyper, always busy, happy, and not so little 19 month old son

Today is the final day of EB Awareness Week!  If you have read each of my post, thank you!  I hope you have learned something you didn't already know; I hope you still spread the word about EB!  Awareness is the key!

EB Awareness Week- An EB Advocate

The dictionary defines the term Advocate as:

ad·vo·cate

   [v. ad-vuh-keyt; n. ad-vuh-kit, -keyt] Show IPA verb, ad·vo·cat·ed, ad·vo·cat·ing, noun

verb (used with object)

1. to speak or write in favor of; support or urge by argument; recommend publicly: He advocated higher salaries for teachers.

noun

2. a person who speaks or writes in support or defense of a person, cause, etc. (usually followed by of ): an advocate of peace.

3. a person who pleads for or in behalf of another; intercessor.

4. a person who pleads the cause of another in a court of law.

An EB Advocate would be someone who support a someone with EB or advocates for EB awareness (among other things).  There are many EB advocates within the EB community; many wonderful people who have NO personal connections to EB but felt drawn to the cause and have taken it on full force! 
 

One person I want to tell you about today is my friend Christie Zink.  Christie first leaned of EB a little over a year ago when she came upon the blog of Tripp Roth.   Since then she has make EB Awareness her main cause!  On her blog, This Little Light, she tells the stories of those with EB.  She is the founded of  'I Refuse' a movement to get others involved in EB.  Check out the EB Shop and get your EB Awareness merchandise before its gone!  It has taken off like wildfire!!!  She has also been nominated for 'Yahoo's Women of Shine!  Please go vote for Christie!!!   The grand prize is $10,000 and if she wins she will donate the money to EB research!!  So please go vote!  Voting ends on Tuesday (10/30)

So GO VOTE!!!

Christie is just one of the MANY EB Advocates out there!  I wish I had time to post about them all but it would take WAY longer than a week!  So to all the EB Adovcates out there, THANK YOU for all that you do for those with EB!!

  

EB Awareness Week

October 25-31, 2012 is National Epidermolysis 

Bullosa Awareness Week!

My hope is to do a blog post each day about something EB related!  I have many ideas; just hoping I can find the time!