Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

June 28, 2011

Three New Angels


Over the weekend, the EB community lost 
three babies to EB.



 rest in peace Baby Lucas

rest in peace Baby AJ

rest in peace Baby Malachi 
 (arrangements being made)

EB In the News

 

Handle With Care: Baby Brody Born Without Skin

June 27, 2011

G-tubes

Joey got a g-tube when he was 16 days old.  He got a mickey-button right off the bat.   He had been in the hospital the time of the surgery for other reasons and stayed another week after that for reason he was in the hospital in the first place. 

He developed no complications from the surgery.  It took weeks for the skin around the site to heal but we knew that was normal.  We keep two pieces of Mepliex Transfer around the site to protect the skin on the stomach and to absorb draining from the tube and stomach and change the dressing at least once a day.

Here is a picture of what his mickey button looks like. 

It does drive me nuts at times, but over all it has been a positive experience and saved his life!  I am happy to answer any questions about g-tubes!  Feel free to email me