**New Release January 2024**
Recommend Blood Work for All Forms of EB starting at age 1 OR for those who have never had blood work done before
TSH
T4 Free
Vit D3
CRP
Sed Rate
CMP (comprehensive metabolic which includes liver and kidney functions)
CBC w/ Differential
Vit C
B12
Zinc
Other Yearly Tests that are Recommended for all forms of EB
EKG
Echocardiogram
Dexa Scan
Infants with Junctional EB should have the following done starting at age 1 month due to malnutrition issues and months and as needed going forward:
CRP
Sed Rate
CMP (comprehensive metabolic which includes liver and kidney functions)
CBC w/ Differential
Vit C
Zinc
Vit D3
Additional recommended test for those with RDEB, JEB or severe EBS and/or have a history of anemia, liver and/or renal issues
Ammonia
Full Iron Panel
Copper
Expanded Hepatic Panel
EB knowledgeable nutritionists are recommending the following nutrients, micronutrients and heavy metal panels at least once every 1-3 years and then repeat as needed based on previous results, patients nutritional status and overall health.
Vitamin A
B Vitamins
Thiamin – Vitamin B1
Riboflavin – Vitamin B2
Niacin – Vitamin B3
Pantothenic Acid – Vitamin B5
Vitamin B6
Biotin – Vitamin B7
Folate (Folic Acid)
Vitamin B12
Vitamin C
Vitamin D
Vitamin E
Vitamin K
Choline
Calcium
Chloride
Chromium
Copper
Fluoride
Iodine
Iron
Magnesium
Manganese
Molybdenum
Nickel
Phosphorus
Potassium
Selenium
Sodium
Zinc
Heavy Metals: Arsenic, Cadmium, Cobalt, Lead, Mercury
