Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

A Guide for New Families

 
 
What is EB?❓❓
 

Testing for EB💉
 

Top 10 things new EB parents need to know from the very start💗
 
 
The Genetics of EB ⭐

 
EB Simplex in Depth   👓
 

Kindler Syndrome in Depth  👓
 
 
Junctional EB in Depth 👓

 
The Statistics of EB  👀
 
 
EB Milestone Survey Results  
 
 
EB Care for the mouth, eyes, noses and ears (** coming soon!!**) 
 
 
 The 2020 revised classifications of EB(**NEW**)📋📊
 

What friends and family need to know👪
 

Pain Management Recommendations 🏥
 

The do’s and don’t's when it comes to an EB baby in the hospital. 🏥
 

Recommend Blood Work for those with EB  💉 (** updated January 2024**)
 

EB Medical Directory 💁
 

For information on wound care, and wound care products.🩹
 
 
Dealing with Skin infections 🛀
 

EB friendly baby products and gear (including diapers, and clothing)
 👶
 

Information on Acid Reflux💊
 

Our experience with G-Tubes
 

Blended Diets (NEW!) 🍎🌽🍇🍉🌿
 

Our experience with Circumcision 🍆
 

EB and Airway Issues😷
 

Common Complications of EB💩
 
 
Heart Related Issues in EB 💓


To learn about SSI and Disability and where to apply  💲
 

To locate on-line support groups and other EB  organizations that provide support, promote awareness and educate others, click here. 💬

 

To learn more about me and how EB affects my life, click here👩
 

To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.    👼🌼🌷🌸

 
©Garrett's House 2024