Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

April 13, 2010


Tips and Suggestions for Newborn Babies with EB
DO'S AND DON'TS in the hospital for a baby born with

1. POP and DRAIN all blisters immediately with a sterile needle.


3. Heart leads can be held on with Surgilast stockinet or a special kind that
won't stick or Coban bandage over gauze.

4. Suctioning can tear the throat or nose. May use Foley catheter or premie suctioner instead.

5. Blood Pressure... area has to be wrapped first... DO NOT place cuff directly onto the skin. NO TOURNIQUETS... apply pressure with hand covered with a blanket.

6. Never pick up the baby under the arms. Carefully slide
one hand under the baby's bottom and the other hand under
their head and lift carefully. Use sheepskin or a padded blanket
for infants to protect the skin.

7. NO RECTAL TEMPS! Nothing inside the rectum... it will tear it.

8. If any IV's are needed, the area has to be wrapped with a small area of skin exposed for the needle. Tape can be placed on the bandage only... NOT the skin.

9. CANNOT bag for urine sample. Heat from the urine will cause blistering .

10. DIAPERS... use only cloth or cloth like with Velcro fasteners.
NO tape or plastic at all. Use a larger size and fit loosely on hips and waist.

11. Feeding... Cross cut nipple to make sucking easier.
Put Vaseline on the nipple and baby's lips. Also can use Haberman feeder.

12. NO MORPHINE for pain. Use milder pain reliever first.

13. Make sure padding is under the baby at all times.
Sheepskin or blankets or foam egg crate padding.

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