Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

April 14, 2010

On-Line Support

The EB Nurse Web Site


EB Research Partnership


Facebook EB Open Lounge


DebRA: Dystropic Epidermolysis Bullosa Research of America: the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families


The EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure.



United Survivors with EB:  Our mission is to help people with EB become more self reliant.


Befriend EB: making life bearable


Other Useful Links


National Rehab: A wonderful wound care product supplier!!

Hollister Wound Care- maker of the new Restore Contact Layer would care dressing, great for those with EB. *NEW*

Direct Medical's web site.  A medical supply company to get wound care bandages, such as mepitel and meplix.


The company that makes Mepitel and Mepliex products.


On-line Textbook of Dermatology


International EB Forum

DebRA of the Netherlands

No comments:

Post a Comment