Disability and SSI (Supplemental Security Income)
Some with EB apply for SSI Disability. It can be a long and frustrating process at times. Below are link to where you can find out more about SSI and applications to apply for SSI. It is important to have good documentation of your EB and take pictures of your wounds to send in as well. Sometimes its the difference between reading about EB and actually seeing the wounds of someone with EB that will get an application approved.
Here you can find the Electronic Booklet for adult Disability Benefits.
Here is the adult on-line application
Here is the booklet for child disability benefits
Here is the child on-line application
To locate your local social security office, click here
To learn more about Medicaid or Medicare or to see if your child may qualify visit the State Children's Health Insurance Program Web Site