Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

May 26, 2011

Carson and John

I have been wanting to blog about this for a week now....just having trouble finding time.

You see there is this AWESOME family in California, the Cannell's. They are a blended family with a total of 8 kids, the oldest has EB.  They are currently in the process of adopting not one, but TWO boys, brothers, from East Europe who have been in an orphanage all their life:(  And for anyone who has looked into adopting you know how costly it can be.  This family has to raise a lot of money in a very short amount of time.  Thank to two WONDERFUL EB mom's that I know, the Cannell's have received over $5000 in donations in less than a week just by Patrice and Courtney talking about Carson and John on their blogs!!! 

I wanted to do my part and spread to word to my family, friends and blog reads who might not have heard of this story before!

I read more about Carson and John and what all is involved in an international adoption, please read the blog post Patrice just wrote this evening!  


She sums it up MUCH better than I could:-)

May 23, 2011

A.J. Highfield - Spaghetti Dinner

Location:
 Chartiers Valley High School
50 Thoms Run Road
Bridgeville, Pennsylvania
 
Date:
Saturday, June 11 · 4:00pm - 7:00pm
 
Additional Info:
Dinner includes Beverage, Salad, Bread, Pasta & Dessert
Adults: $8 per ticket
Children ages 5-12: $5
Children under 5: $Free
Checks payable to: ACHIEVA Family Trust - Benefit of A.J. Highfield
Also available at the dinner:
Raffle Tickets for Chinese Auction Baskets
“Lottery” Raffle Tickets

All proceeds benefit A.J. Highfield Butterfly Kid.
 
A.J. Highfield was born on March 20, 2011 with Epidermolysis Bullosa (EB). With skin as fragile as a butterfly wing, EB patients are dubbed “Butterfly Children”.

EB is a rare skin disease that causes the skin to be so fragile that the slightest friction can cause severe blistering. Severe forms of EB cause patients to live with constant pain and scarring.

The only treatment for EB is daily wound care and bandaging.
Today there is no cure.


Can't attend? You can send a donation of any amount directly to ACHIEVA Family Trust - Benefit of A.J. Highfield
Attn: Amy Dolan Strano, Esq.
711 Bingham Street
Pittsburgh, PA 15203

1st Annual Walk-A-Thon Epidermylosis Bullosa In Memory Of Angelica Tafoya

Date:
Saturday, June 25 · 7:00am - 8:00pm
 
Location:
Colorado State University-Pueblo
2200 Bonforte Boulevard
Pueblo, Colorado
 
Organized by:
 
Additional Info:
Hi everyone, I am 19 year old full time college student I am starting an annual Walk-A-Thon to raise awareness of a rare and deadly skin disease Epidermolysis Bullosa (E.B.) it will be in Memory of my cousin Angelica Tafoya, she passed away October 18th, 2005. She was 12 years old. All money raised in this event will go to the E.B. fund at The Children’s Hospital in Denver, CO.

There will be a $20 Registration fee for each participant to be turned in with the registration form by June 1st, if you miss the registration deadline, you can register at the event, there is a $25 LATE registration fee. It would be greatly appreciated if you register by the deadline in order for me to ensure that I accommodate for enough food and the correct size t-shirts for each participant. The registration fee will cover one t-shirt, breakfast and lunch. The pledge sheet and donations are to be turned in during sign in on the day of the event. There will be bounce houses and other events for children so bring the entire family. Extra meal tickets, additional T-Shirts, other items and refreshments will be available for purchase at the event, as well more opportunities for donations.


CONTACT ME TODAY FOR MORE INFO & A REGISTRATION PACKET.


You can participate as an individual or as part of a team. Teams can consist of family members, co-workers, or friends. Our goal is to have a minimum of ONE person from each team walking at all times. Hope to see you there!

IF ANYONE IS INTERESTED IN PARTICIPATING OR HELPING IN ANY WAY PLEASE LET ME KNOW. LOCAL BUSINESSES ARE ENCOURAGED TO MAKE CONTRIBUTIONS TO THIS EVENT AND WILL BE OFFERED A PLACE FOR ADVERTISEMENT OF THEIR BUSINESS ON THE EVENT T-SHIRT. Even if you can not attend the actual event you can still contribute in many ways.

For more information, please contact: Victoria (Tori) Siguenza
(719)242-6724 Victoriasiguenza@gmail.com


PLEASE PASS THIS INVITE ON!

GREAT WAY TO HELP THOSE IN NEED!
 
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