Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

May 23, 2011

1st Annual Walk-A-Thon Epidermylosis Bullosa In Memory Of Angelica Tafoya

Date:
Saturday, June 25 · 7:00am - 8:00pm
 
Location:
Colorado State University-Pueblo
2200 Bonforte Boulevard
Pueblo, Colorado
 
Organized by:
 
Additional Info:
Hi everyone, I am 19 year old full time college student I am starting an annual Walk-A-Thon to raise awareness of a rare and deadly skin disease Epidermolysis Bullosa (E.B.) it will be in Memory of my cousin Angelica Tafoya, she passed away October 18th, 2005. She was 12 years old. All money raised in this event will go to the E.B. fund at The Children’s Hospital in Denver, CO.

There will be a $20 Registration fee for each participant to be turned in with the registration form by June 1st, if you miss the registration deadline, you can register at the event, there is a $25 LATE registration fee. It would be greatly appreciated if you register by the deadline in order for me to ensure that I accommodate for enough food and the correct size t-shirts for each participant. The registration fee will cover one t-shirt, breakfast and lunch. The pledge sheet and donations are to be turned in during sign in on the day of the event. There will be bounce houses and other events for children so bring the entire family. Extra meal tickets, additional T-Shirts, other items and refreshments will be available for purchase at the event, as well more opportunities for donations.


CONTACT ME TODAY FOR MORE INFO & A REGISTRATION PACKET.


You can participate as an individual or as part of a team. Teams can consist of family members, co-workers, or friends. Our goal is to have a minimum of ONE person from each team walking at all times. Hope to see you there!

IF ANYONE IS INTERESTED IN PARTICIPATING OR HELPING IN ANY WAY PLEASE LET ME KNOW. LOCAL BUSINESSES ARE ENCOURAGED TO MAKE CONTRIBUTIONS TO THIS EVENT AND WILL BE OFFERED A PLACE FOR ADVERTISEMENT OF THEIR BUSINESS ON THE EVENT T-SHIRT. Even if you can not attend the actual event you can still contribute in many ways.

For more information, please contact: Victoria (Tori) Siguenza
(719)242-6724 Victoriasiguenza@gmail.com


PLEASE PASS THIS INVITE ON!

GREAT WAY TO HELP THOSE IN NEED!
 
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