Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

July 27, 2010

Recommened Medical Tests for those with EB

*NOTE- this is no medical advice.  This is just the recommendation of one EB Clinic and its doctors.  Each person with EB is different and require different treatment plans and medical tests.  PLEASE consult your primary doctor with question regarding these tests for yourself or your child. 

Per the Cincinnati, OH EB Clinic the following tests are recommended for all patients with EB:

Routine tests every 6-12 mo

·         CBC

·         Erythrocyte Sedimentation Rate (ESR)

·         CRP

·         Fe, Fe binding capacity, Ferritin

·         Zinc

·         Liver function tests (incl. albumin)

·         Renal panel (BUN, creatineine, electrolytes)

·         Urine

·         25 (OH) Vit D and Ca, Se, Carnitine

·         ECG (1/yr)

·         Bone mineral density (1/yr)

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