Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

Site Index

 
 
What is EB?
 

Testing for EB
 

Top 10 things new EB parents need to know from the very start
 
 
The Genetics of EB

 
The Statistics of EB

 
 
EB Milestone Survey Results
 
 
 The 2020 revised classifications of EB
 

What friends and family need to know
 

Pain Management Recommendations
 

The do’s and don’t's when it comes to an EB baby in the hospital.
 

Recommend Blood Work for those with EB 
 

EB Medical Directory
 

For information on wound care, and wound care products.
 
 
Dealing with Skin infections 
 

EB friendly baby products and gear 
 

Information on Acid Reflux
 

Our experience with G-Tubes
 

Our experience with Circumcision
 

 

Common Complications of EB
 
 
Heart Related Issues in EB


To learn about SSI and Disability and where to apply 
 

To locate on-line support groups and other EB  organizations that provide support, promote awareness and educate others, click here.

 

To learn more about me and how EB affects my life, click here.  
 

To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.    

 
©Garrett's House 2021

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