Jonah's EB Auction

Love bidding on awesome stuff?  Love helping out organizations looking to raise money for a very worthy cause?  Well then you need to check out Jonah's EB Auction!


Auction Detail:

What: An ONLINE auction to raise money for EB research and advocacy (all proceeds go to DebRA)

When: Thursday February 24th @ 8pm until Sunday February 27th @ 8pm

Where: Right here at www.jonahsebauction.blogspot.com!  You can bid on lots of fabulous items from the comfort of your own living room!! If you want to see how bidding will work (or get a little practice bidding for your favorite item!) you can do so here.

PGD-IVF

Preimplantation Genetic Diagnosis is available to couples wishes to have a child not affected by a certain genetic disorder that runs in the family.  EB is one such disorder.  Preimplantation genetic diagnosis allows for the genetic testing of embryos before implantation and pregnancy.  Once EB Free embryos are identified they can be implanted via IVF.  

Here is a clinic in New Jersey that offers this service.  They also explain more about the procedure.  

There are clinic in varies parts of the US that also offer this service.  Your doctor should be able to help you locate one if you are interested in learning more about this process.  

You can read about an EB Family who went through this process here