Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

October 7, 2011

Dressing Changes



I recently did two blog post on my other blog 
on how we do dressing changes with Joey.

You can find part one here and part two here

Washing Tubifast

Many have asked me how I wash the Tubifast we use on Sami and Joey.  So I thought i'd do a blog post on it!

1) get a Large Lingerie bag used for washing Lingerie in the washing machine.  (I use a Tide High Performance Wash Bag)

2) Unroll the entire roll of Tubifast and place in the bag. (I have done up to 3 rolls at one time)  Zip closed. (VERY important)

3) Washing on a normal cycle with your normal detergent.  I also add 1 cup of baking soda and use a full capful of fabric softener to make it extra soft. 

4) I dry it in the dryer one regular drying cycle. 

5) I remove it from the bag and stretch it out a little bit more and then hang it around the house to finish drying (I hang it on the back of the dinning room chairs:)

6) Once dry I cut it to the length that we need for arms, legs, etc...and store it in Ziploc bags so its ready for when we need it.