Many have asked me how I wash the Tubifast we use on Sami and Joey. So I thought i'd do a blog post on it!
1) get a Large Lingerie bag used for washing Lingerie in the washing machine. (I use a Tide High Performance Wash Bag)
2) Unroll the entire roll of Tubifast and place in the bag. (I have done up to 3 rolls at one time) Zip closed. (VERY important)
3) Washing on a normal cycle with your normal detergent. I also add 1 cup of baking soda and use a full capful of fabric softener to make it extra soft.
4) I dry it in the dryer one regular drying cycle.
5) I remove it from the bag and stretch it out a little bit more and then hang it around the house to finish drying (I hang it on the back of the dinning room chairs:)
6) Once dry I cut it to the length that we need for arms, legs, etc...and store it in Ziploc bags so its ready for when we need it.
to promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa.
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