EB Awareness Week 2013: Remembering the EB Angels

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©Garrett's House 2021

EB Awareness Week- In loving lemory...

Garden Gate

Welcome to the Garden of Angels

A place to honor and remember those have lost their brave battle to EB and now live EB free, flying high up in the sky, along with the little butterflies.     

"When one of your children goes out of your life, you think of what he might have done with a few more years and you wonder what you are going to do with the rest of yours.

You never really accept it; you just go through the motions.

Then one day, because there is a world to be lived in, you find yourself a part of it again, trying to accomplish something--something that he did not have time enough to do.

And, perhaps, that is the reason for it all. I hope so."

~ Joseph Kennedy Sr.

“It has been said, 'time heals all wounds.' I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens, but it is never gone.”

~Rose F. Kennedy    


Angel page 1

Angel page 2

Angel page 3

Angel page 4


If you have an EB Angel you would like to add to the garden, please email and i'd be honored to add your loved one to my site.  

Angels Page 2

Adam Graham was born on May 9, 1993
and became an angel on August 4, 2003.
He had the recessive dystrophic form of EB.  
His family resides in Dublin, Ireland    
           
   
        "Your pain is gone, You are free
Now you can go on a running spree
Do all the things you wanted to do
Like climb and swing and wrestling too
You touched so many in your short life
You made us laugh you made us cry
Even when you had to die
but thats ok because you will live on in
our hearts forever"

Montanna Rea Rineer was born on June 05, 2005
an became an angel on August 16, 2005 from a heart condition unrelated to EB .  She had the recessive dystrophic form of EB.  Her family lives in Pennsylvania.

Austin Stanley Johnson was born on 
February 19, 2006 
and became an angel on April 30, 2006.  
He had the Junctional form of EB.
His family resides in California.

   
Andrew Michael Cumbee was
born: on August 6, 1974
and became an angel on June 2, 2007 .
He had the Dowling Meara form of EB Simplex.  
His family resides in Medford, Oregon.    

 

Adrian John Ingrey was born on May 16, 1981
and became an angel on July 27, 1981.
He had the Hertliz form of Junctional EB.  
His family resides in Austrialia

Jordan Kristopher Lewis was
born on February 07, 2005 and became 
an angel on March 19, 2005.   
He has the Junctional form of EB
His family lives in Halifax, Nova Scotia, Canada .

You can visit their site here

    

Andrea Williams was
born on  June 8, 1991
and became an angel on July 19, 1992 .
She had the Junctional form of EB.
Her parents, Albert and Peggy reside in Mekoryuk, Alaska

     

Braxton Lee Harvey was born on July 25, 2006
and became on angel on August 15, 2008
He had the Junctional-NH form of EB.  
His family reside in St. Cloud, FL

Braxton's Memorial Site

   
Brittany Nicole Hammonds was born on June 22, 1995 
and became an angel on July 24, 2005.  
She had the recessive dystrophic form of EB.
Her family resides in Salem, OR.

Brittany's On-Line Memorial    

 

Cristina Perez was born on July 4, 1983 and 
became an angel on October 7, 2007
She had the RDEB-HS form of EB.
Her family resides in California

Crisitna's web site: EB Patient

Angels Page 3

Kyle and Zach Ostrander were born on
December 1, 2007 and became angels on J
anuary 30, 2008 (Kyle) and
February 5, 2008 (Zach)
They had the Hertliz form of EB.
Their families reside in
Great Meadow, New Jersey.

Trevor Lutter was born on
March 25, 1999 and became an angel 
on March 19, 2008.He had the Hertliz form of 
Junctional.  His families lives in
Sand Springs, OK.     

 Jesse Williams was born on July 20, 2007
and became an angel on April 12, 2008.
He had the Junctional form of EB.  

His parents, Albert and Peggy live in
Mekoryuk, Alaska .

Olivia Jayne Katz-Dixon was
born on December 13, 2004 and 
became an angel on January 21, 2005 

(39 precious days)
She had the Junctional form of EB. 
Her family lives inRosendale, NY (Hudson Valley)

"She was our sweet, brave butterfly girl, and we miss her every single day"

Jennifer Deprizio was born on
December 14, 1979 and became an angel 
onMay 18, 2005.  She had the recessive 
dystrophic form of EB
Her family resides in Indialantic, FL.

Jennifer's On-Line Memorial
Jennifer's Web Site

Giovanni West
was born on January 15, 2008
and became an angel on June 30, 2008.
He had the Junctional form of EB.
His family lives in
Rome, NY 

  

Drake E. Freed was
born on August 3, 2007
and became an angel on September 25, 2008.
He had the Hertliz form of Junctional.  

His family resides in Queensbury, NY

Drake's Memorial Site   

Tabitha Nichols was born on June 29, 1984 
and became an angel on July 18, 2008.   
She had the recessive dystrophic form of EB.  
Her family is from Hastings, Michigan.

Angels Page 1

Welcome to the garden of Angels.  A place to honor and remember those who fought their brave batter against Epidermolysis Bullosa (EB).    

Garrett James Denslaw was born on 
December 6th, 2004  and became an EB Angel on 
December 18th, 2004.  
He had the Simplex-Dowling Meara form of EB.  

His family lives in Orlando Florida.

Lauren Marie Rader was born on July 26, 2003 and 
became an EB Angel on March 18, 2004.  She had the Non-Hertliz form of Junctional EB.  
Her family lives in Louisville, Kentucky.  

   Paige Elizabeth Phillips was born on July 28, 2003 
and became an EB Angel on May 14, 2004.  

She had the non-herlitz form of Junctional EB.  

Her parents and sisters live in Galesburg, IL

   

Ava Elizabeth Medeiros was born on July 14, 2004 
and became an EB Angel on November 20, 2004.  
She had the Junctional w/  pyloric atresia 

type of EB.  Her family lives in Matheun, Mass.

www.everlastingbutterfly.com

 Xantha Maree Marshall was born on
February 15, 2007 and became an EB Angel 
on April 15, 2007. She had the Junctional 
Herlitz form of EB.  

Her parents and big sister live in Australia .


Xantha's One-Line Memorial     

Anthony Lee Postell Jr. was born on March 28, 2007
and became an EB Angel on May 17, 2007 .  
He had the Junctional form of EB.  
His parents, Sophia Christina Stubbs and 
Anthony L. Postell Sr, reside in Clearwater, FL

Remembrance

Remembrance is a golden chain
Death tries to break, but all in vain.
To have, to love and then to part
is the greatest sorrow of one's heart.
The years may wipe out many things
but some they wipe out never.
Like memories of those happy times
when we were all together.

~unknown

Harrison Wong was born on October 8, 2002 and 

became an angel on March 29, 2004. He had the 
Simplex Dowling Meara form of EB.  

His parents and sisters live in Huston, Texas. 

Harrison's On-Line Memorial    

 

 Janna Terkuc was born on January 6, 2004 and 
became an angel on September 22, 2004.  
She had the Junctional Herlitz form of EB
Her family lives in Ottawa Canada

Janna's Website

 

    Allie Rameirz was born on August 29, 2007 
and became an angel on October 11, 2007.  

She had the recessive dystrophic form of EB.  

Her family resides in Texas.     

 

 Jordan Marie Herreid was born on April 26, 2003 
and became an angel on July 30, 2003.  

She had the Junctional- Herlitz form of EB.  

Her parents and big sister reside in Yakima, WA

Jordan's On-Line Memorial     

Angels Page 4

Jayden Ivey was born on June 7th, 2009 and 
became an Angel on July 5th, 2009.  
He had Junctional EB.  

His family resides on Ann Arbor Michigan.      

 William Christmas was born on April 16, 2009 

and became an Angel on July 15, 2009.  
He had Junctional- Hertliz EB.  

His family resides in Brazil, IN.

      
David Matthew Alton was born on August 22, 1995 
and became an angel on October 29, 1995.  

He had Junctional EB.  

His family resides in Michigan.