Normally I would go in great depth and detail when it comes to EB statistics, however, I have had many of my ideas and posts "taken" from my blog without permission and passed off as the work of someone else. So I am hesitant to share too much detail for fear it'll be "stolen" as well.
Between the years 2001 and 2021, I came across 2,018 new EB babies born during that time frame. (world wide)
1,003 cases were boys
987 cases were girls
in 28 cases the gender was not known
The most common month to be born in was July. In the US, Texas had the most cases of EB babies.
32% (650 babies) were born with some form of Junctional EB
33% (663 babies) were born with some form of EB Simplex
31% (623 babies) were born with some form of Dystrophic EB
less than 1% (3 babies) were born with Kindler Syndrome
4% (82 babies) had an unknown form of EB
The mortality rate for that period of time was 19% (390 babies)
