EB Statistics
The
incidence column is the one that estimates number born in a given
year. The last official birthrate numbers are form 2009, and that year
it was 4,130,665 (2010 and 2011 are not available)
Material is based on the NEBR study population
| EB type or subtype: | Prevalence* | Incidence** | |||||||||
| EB (All types and subtypes, including unclassified patients) | 8.22 | 19.60 | |||||||||
| EBS | 4.60 | 10.75 | |||||||||
| EBS, Localized (formerly Weber- Cockayne) | 3.14 | 6.81 | |||||||||
| EBS, all others | 1.46 | 3.95 | |||||||||
| JEB | 0.44 | 2.40 | |||||||||
| JEB-Herlitz | 0.07 | <0.41 | |||||||||
| JEB, other | 0.37 | <2.04 | |||||||||
| DDEB | 0.99 | 2.86 | |||||||||
| RDEB | 0.92 | 2.04 | |||||||||
| RDEB, severe generalized (formerly Hallopeau- Siemens) | 0.42 | 0.41 | |||||||||
| RDEB, all others | 0.49 | 1.63 |
*Prevalence of EB patients per one million births (1990)
**Incidence of EB births per one million live births (1986-1990)
Fine,
Jo-David and Hintner, Helmut. (2008) "Life with Epidermolysis Bullosa
(EB): Etilogy, Diagnosis, Multidisciplinary Care and Therapy"
Springer-Verlag/Wien, New York.
The
number in the Incidence Column is per 1 million births so to find the
actual number of new cases of EB each year in the US, multiple that
number by 4.13 (the approximate total number of births in the US each
year)
So there is approximately 80 new cases of EB in the US each year. Of those 80-
45 will have some form of EB Simplex
10 will have some form of Junctional
12 will have Dominant Dystrophic EB
10 will have Recessive Dystrophic EB
This is just an approximate # and some years there will be more or less in each category.
©Garrett's House 2021
