Updated: Stem Cell Therapy for Severe Forms of E.B.

You can search for EB Clinical Trials here

Info for the one at the University of Minnesota can be found here

(this page is a work in progress and as I locate/learn of more clinical trials I will update this page)

Here is the list of web sites for some of the kids who have undergone or are currently undergoing the transplant

#2 Sarah

#4 Keric

#5 Hannah

A Cure for Hannah

#6 Fallyn

Help Fallyn

#7 Samantha

Samantha's Caring Bridge Page

#8 Rafaella

Rafi's World

#9 McKenzie

McKenzie's Web Site

Caring Bridge Page

#10 EJ

Caring Bridge Page

#11 Daylon
 The first Junctional baby to go through the transplant


#12 Bella
(sadly Bella passed away from complication in October 2010)


#13 Payton


#14 Elle
(sadly Elle passed away from complications in November 2010) 



#15 Charlie

#16

#17 Nicholas

#18 Hailey

# 19 Quinn
(sadly Quinn passed away in May 2012) 


#20 Sahar 

#21 Jackson

Baby Elle

She has her very own web site!!  ( Facebook page too!)

The Butterfly Fund

Just wanted to share the link to an EB Organization that assists families that I recently learned about.  It's called The Butterfly Fund.  Check it out!