Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

February 20, 2013

EB in the News

There have many many EB related news stories recently!

Federal lawsuit filed against Golden Corral restaurant in Michigan over Disabilities Act violation

 SI Parents Fight for Student With Disorder

Phoenix girl born with tough spirit, delicate skin from 'butterfly disease'

Brave 3-Year-Old Girl’s Skin Blisters At Every Touch 

Benefits and fundraisers set for local girls


Purple rays of hope for Windham 3-year-old

Slightest touch leads to raw blisters for 7-year-old girl


And finally, please take a moment to meet sweet baby Katelyn.  She was born in January and has a rare form of Junctional EB called JEB-PA.  Unfortunately she isn't doing well and no one is sure how much time she has left.  Please pray for her family during this uncertain time.  

No comments:

Post a Comment