Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

May 22, 2012

EB Clinical Trials

You can search for EB Clinical Trials here

Info for the one at the University of Minnesota can be found here


(this page is a work in progress and as I locate/learn of more clinical trials I will update this page)

Here is the list of web sites for some of the kids who have undergone or are currently undergoing the transplant

#2 Sarah

#4 Keric

#5 Hannah

#6 Fallyn

#7 Samantha

#8 Rafaella

#9 McKenzie
#10 EJ
(sadly EJ passed away from complications in 2011)
 

#11 Daylon
 The first Junctional baby to go through the transplant


#12 Bella
(sadly Bella passed away from complication in October 2010)


#13 Payton


#14 Elle
(sadly Elle passed away from complications in November 2010) 



#15 Charlie


#16 



#17 Nicholas


#18 Hailey


# 19 Quinn
(sadly Quinn passed away in May 2012) 


#20 Sahar 

those in-line to be transplanted: 


#21 Jackson

May 10, 2012

Please Sign the Wound Care Bill Petition for EB Patients!!

You can find it here

Thank you!!!

April 4, 2012

Jogging for Jonah

Jogging for Jonah

Helping Find a Cure for EB in Honor of Jonah Williams

Saturday, May 12, 2012
5K Walk/Run – 8:30 am
1 Mile Fun Run – 8:45 am

The registration deadline is May 1st, 2012

Location:
Tanglewood Park
Clemmons, NC 


March 25, 2012

Love for Lucas

Join us on May 12, 2012 at 5:30 pm for a night of fun, silent auction, raffles and unlimited bowling and of course food in memory of their baby boy. For more information and to purchase tickets click on the link below.

Love for Lucas




News Article about Lucas


All proceeds will benefit DebRA of America to fund research and assist families affected with EB.