Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

May 22, 2012

EB Clinical Trials

You can search for EB Clinical Trials here

Info for the one at the University of Minnesota can be found here

(this page is a work in progress and as I locate/learn of more clinical trials I will update this page)

Here is the list of web sites for some of the kids who have undergone or are currently undergoing the transplant

#2 Sarah

#4 Keric

#5 Hannah

#6 Fallyn

#7 Samantha

#8 Rafaella

#9 McKenzie
#10 EJ
(sadly EJ passed away from complications in 2011)

#11 Daylon
 The first Junctional baby to go through the transplant

#12 Bella
(sadly Bella passed away from complication in October 2010)

#13 Payton

#14 Elle
(sadly Elle passed away from complications in November 2010) 

#15 Charlie


#17 Nicholas

#18 Hailey

# 19 Quinn
(sadly Quinn passed away in May 2012) 

#20 Sahar 

those in-line to be transplanted: 

#21 Jackson

No comments:

Post a Comment