Pages

A Guide for New Families

 
 
What is EB?❓❓
 

Testing for EB💉
 

Top 10 things new EB parents need to know from the very start💗
 
 
The Genetics of EB ⭐

 
EB Simplex in Depth   👓
 

Kindler Syndrome in Depth  👓
 
 
Junctional EB in Depth 👓

 
The Statistics of EB  👀
 
 
EB Milestone Survey Results  
 
 
EB Care for the mouth, eyes, and nose  👁 👃  👄 *new 10/2024*
 
 
 The 2020 revised classifications of EB(**NEW**)📋📊
 

What friends and family need to know👪


Hospital and Surgery Info🏥 **updated 10/2024**
 

Pain Management Recommendations 🏥
 

The do’s and don’t's when it comes to an EB baby in the hospital. 🏥  **updated 10/2024**
 

Recommend Blood Work for those with EB  💉 (** updated January 2024**)
 

EB Medical Directory 💁
 

For information on wound care, and wound care products.🩹
 
 
Dealing with Skin infections 🛀 *updated 10/2024
 

EB friendly baby products and gear (including diapers, and clothing)
 👶
 

Information on Acid Reflux💊 ** updated dated 10/2024**
 

Our experience with G-Tubes
 

Blended Diets (NEW!) 🍎🌽🍇🍉🌿
 

Our experience with Circumcision 🍆
 

EB and Airway Issues😷
 

Common Complications of EB💩
 
 
Heart-Related Issues in EB 💓


To learn about SSI and Disability and where to apply  💲
 

To locate online support groups and other EB  organizations that provide support, promote awareness, and educate others, click here. 💬

 

To learn more about me and how EB affects my life, click here👩
 

To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.    👼🌼🌷🌸

 
©Garrett's House 2024