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A Guide for New Families

 **** If you would like a FREE copy of my guide as a PDF file, please email sara.denslaw@gmail.com, or find me on Facebook and send me a message there. ****


 
What is EB?❓❓
 

Testing for EBπŸ’‰
 

Top 10 things new EB parents need to know from the very startπŸ’—
 
 
The Genetics of EB ⭐**updated 4/2026**

 
EB Simplex in Depth   πŸ‘“
 

Kindler Syndrome in Depth  πŸ‘“
 
 
Junctional EB in Depth πŸ‘“

 
The Statistics of EB  πŸ‘€
 
 
EB Milestone Survey Results  
 
 
EB Care for the mouth, eyes, and nose  πŸ‘ πŸ‘ƒ  πŸ‘„ *new 10/2024*
 
 
 The 2020 revised classifications of EB(**NEW**)πŸ“‹πŸ“Š
 

What friends and family need to knowπŸ‘ͺ


Hospital and Surgery InfoπŸ₯ **updated 10/2024**
 

Pain Management Recommendations πŸ₯
 

The do’s and don’t's when it comes to an EB baby in the hospital. πŸ₯  **updated 10/2024**
 

Recommend Blood Work for those with EB  πŸ’‰ (** updated January 2024**)
 

EB Medical Directory πŸ’
 

For information on wound care, and wound care products.🩹
 
 
Dealing with Skin infections πŸ›€ *updated 10/2024
 

EB friendly baby products and gear (including diapers, and clothing)
 πŸ‘Ά
 

Information on Acid RefluxπŸ’Š ** updated dated 10/2024**
 

Our experience with G-Tubes
 

Blended Diets (NEW!) πŸŽπŸŒ½πŸ‡πŸ‰πŸŒΏ
 

Our experience with Circumcision πŸ†
 

EB and Airway Issues😷
 

Common Complications of EBπŸ’©
 
 
Heart-Related Issues in EB πŸ’“


To learn about SSI and Disability and where to apply  πŸ’²
 

To locate online support groups and other EB  organizations that provide support, promote awareness, and educate others, click here. πŸ’¬

 

To learn more about me and how EB affects my life, click hereπŸ‘©
 

To visit my Garden of Angels, a place to honor those who lost their brave battle to EB, click here.    πŸ‘ΌπŸŒΌπŸŒ·πŸŒΈ

 
©Garrett's House 2026