While trying to find the best moisturizer for my skin, I began researching the different types of moisturizers/creams/lotions/oils, etc.. ...

EB can affect all aspects of the body; including the eyes, mouth, and nose. Here are some tips from others with EB for those areas: MOUTH Th...

While skin infections in EB are common, there are many things one can do to prevent infections. The following advice was given to me by an i...

Whenever I tell people we did blended diet g-tube feeds for 12 years vs using pre-made, sugar filled commercial formula, they look at me lik...

STOP!!!  PLEASE READ BEFORE TOUCHING ME!! I have Epidermolysis Bullosa .  It is a connective tissue disorder that causes fragile skin, inter...