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September 3, 2026
Why we don't use petroleum based products anymore
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Since I have been getting a lot of private messages all day asking me why I dont recommend using Aquaphor on those with EB, along with messa...
July 30, 2026
30 years in the EB Community
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This fall it will be 30 years since I went off to college, where I gained regular access to the internet. I spent as much time as I could...
May 10, 2026
Long-Term Use of Auqphor/Vaseline
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Dangerous Long-Term Use of Aquaphor/Vaseline It is hard to remove effectively from the skin/wounds without damaging the skin It smoothers ...
January 9, 2026
Anesthesia and Hospital Guidelines for those with EB.
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The most recent anesthesia guidelines for those with EB
December 15, 2025
In Loving Memory: Akuminto Imihle Mjongile
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Below is the store of Akuminto, as shared by her mother 💗 My name is Sisipho Mjongile, and I'm from Cape Town, South Africa. I'm a ...
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