EB can affect all aspects of the body; including the eyes, mouth, and nose.
Here are some tips from others with EB for those areas:
MOUTH
Those with EB are often affected by wounds in the mouth that can be painful, and slow healing which makes eating, drinking, and speaking difficult. Some find swishing with salt water can be helpful. Others find that magic mouthwash or Carafate can provide temporary relief from the pain
EYES
Eye Issues are a common and painful complication in those with EB. When the eyes become dry, they can become damaged easily, causing corneal abrasions. Keeping the eyes lubricated daily, but especially at night. It is recommended that those with EB use preservative-free eye drops or eye ointment frequently to prevent abrasions. Everyone has their own preference on which eye drops/ointment they use. When corneal abrasions are frequent or begin to interfere with daily life, bandage contact lenses are often used. These lenses are just like contact lenses and not only provide immediate pain relief and protection while the abrasions heal. Many with EB wear them daily to prevent corneal abrasions. The most common brands used in those with EB are Air Optix Day and Night Aqua 30-day lenses.
NOSE
Just like the rest of the body, the nose can be affected in those with EB. The inside of the nose can blister or develop wounds. Dry weather can cause nose bleeds as well. Using saile nose spray or saline nose gel to help keep the inside of the nose moist to help reduce wounds and nose bleeds from developing. When wounds become chronic inside the nose, scabs can occur, along with inflammation. Over time the opening of the nose can scab closed, interfering with breathing. Using a humidifier while you sleep, along with saline spray/gel can help keep the inside of the nose clear.
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