Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

October 31, 2022

20 years of EB Stats

Normally I would go in great depth and detail when it comes to EB statistics, however, I have had many of my ideas and posts "taken" from my blog without permission and passed off as the work of someone else.  So I am hesitant to share too much detail for fear it'll be "stolen" as well.


Between the years 2001 and 2021, I came across 2,018 new EB babies born during that time frame. (world wide)


1,003 cases were boys

987 cases were girls

in 28 cases the gender was not known


The most common month to be born in was July.  In the US, Texas had the most cases of EB babies.


32% (650 babies) were born with some form of Junctional EB

33% (663 babies) were born with some form of EB Simplex

31% (623 babies) were born with some form of Dystrophic EB

less than 1% (3 babies) were born with Kindler Syndrome 

4% (82 babies) had an unknown form of EB


The mortality rate for that period of time was 19% (390 babies)  



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