Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

October 25, 2012

EB Awareness Week: The History

Per the DebRA web site: "National Epidermolysis Bullosa (EB) Awareness Week, is a time to increase awareness of EB, to promote the need for a cure and to spur advocacy on behalf of families suffering with the emotional, financial and physical burden of the disease."

EB Awareness Week was first established in 1984 by President Ronald Reagan!  You can read the Proclamation here.  It was later decided to hold EB Awareness Week the last week of October each year.

There is no right or wrong thing to do during this week.  So people plans HUGE events within their community.  Some pass around info at work, school or within their community about EB.  Some (like me) post various blogs to educate and promote awareness about EB.  It doesn't matter what you do, just do something! 

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