Today I was speaking to another EB mom on the phone who lives near me and who sadly lost her baby to EB about 14 months ago. We were talking about the hospital our kids were born. I personally don't like that hospital and blame the doctors there for Garrett's death. But that is another story for another day. Anyways, she was telling me how much the place has changed and how they are set up much better to care for the next EB baby to be born there. Since Garrett, there has been 4 other EB babies born, all boys, born at the very same hospital. Only 2 are currently living. But because of the things this place learn with Garrett and the mistakes that were made, they have come to realize how better to care for an EB baby and what things should be done and which things should not be done. Which is a good thing, but I still will never trust that hospital to care for any of my kids EB or not.
Even though I am glad these good things seem to be happening there, it still doesn't erase the fact that it cost Garrett his LIFE for those thing to occur. And that makes me so sad to think about that sometime. Not matter how much good came from the situation....it can never take away all the pain of losing a child....
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