Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

May 18, 2010

2010 Patient Care Conference agenda update!

Hello Everyone,

The following information is regarding recent updates to the 2010 Patient Care Conference agenda. The Agenda for the Patient Care Conference runs from Wednesday afternoon to Saturday morning. On Wednesday, registration is from 11:00am until 1:00pm. Afterward, an exciting roster of speakers take over the stage from 1:00pm - 4:00pm.

The Hyatt Regency Cincinnati’s official hotel check in time is 3:00pm. If you arrive earlier and your room is not ready, the hotel will hold your luggage until check in time. Hotel parking is $15.00 per day.

On Thursday, the program runs all day from 9:00am - 4:45pm. There is a break for lunch from noon until 1:00pm where we will enjoy “A Cincinnati Lunch Buffet”, then speakers will resume. At 5:00pm an Italian buffet dinner will be served. Families going on the aquarium trip can either eat in the dining area or make their meals to go if they wish to relax in their rooms before the big night out. Buses will leave from the hotel at 7:00pm then run continuously until everyone is at the aquarium. We have the aquarium booked until 11:00pm but some buses will return earlier to accommodate younger children who are tired.

On Friday, the program starts at 9:00am and runs until 4:45pm. A Southwest Buffet Lunch break is from noon until 1:00pm. The Speakers will resume at 1:05pm and speak until 4:45pm.
Saturday, June 19th DebRA will host a Continental Breakfast where everyone can exchange contact information and get to know each other.

Accommodations have been made for soft diets (including, ensure and boost) and kids’ meals. We will be happy to help you with any other food requests.

Updates will be made via Facebook/debraofamerica and if there are any changes to the agenda.

If you have any further questions, please feel free to contact the DebRA office at 212.868.1573 or

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