BBC Lineline Appeal for DebRA

This was recently on the TV station BBC in the UK:

Peace, Love and Aurbey Joy

 Oct. 6, 2010 - Nov. 17, 2010

"At 7:45 p.m., exactly six weeks to the day of her birth, Aubrey Joy Oberlin became an angel in heaven. She was surrounded by love to the very last minute. Rest now, baby girl. Rest now in peace. "

Visit her Facebook Page

Heaven's Newest Angels

This week Heaven gained two new butterfly Angels.

Joshua James Gibson lost his battle to RDEB on November 2, 2010.  He was 8 1/2 years old.  You can view his tribute video here:






Then, just yesterday, Elizabeth (Elle) Cady Pop lost her brave battle against JEB-H due to complcation of the bone marrow transplant she received just 42 days prior.  You can read her journey and leave a message for her family on their blog by click on the picture below:

"When someone you love becomes a memory, that memory becomes a treasure" 

~ unknown

a fitting quote

"Perhaps they are not stars, but rather openings in heaven where the love of our lost ones pours through and shines down upon us to let us know they are happy.”

~ an Eskimo Proverb

EB Awareness Week: In Loving Memory

It's National EB Awareness Week and today i'd like to honor and remember those who are no longer with us after their brave fight against EB.

Shannon P.
Ryan S.
Owen P.
Labrea
Heaven T.
Annabella R.
Abbi W.
Wesley S.
Leah T.
Baby Girl A.
Baby Boy B.
Braiden B.
Craig W.
Emberly P.
Gabriel V.
Gage M.
Grace P.
Jameson S.
Jayden I.
Landon S.
Lee L.
Lucy N.
William C.
Addison J.
Alex H.
Brandy K.
Braxton H.
Brida H.
Bursa
Derek J.
Devin R.
Emma M.
Giovanni W.
Jacob J.
Jacob L.
James U.
Jesse W.
Kara B.
Kaylee
Kyle O.
Le Andre S.
Matthew
Megan H.
Mia H.
Owen D.
Ryland B.
Sarah M.
Tabitha N.
Zach O.
Allie R.
Andrew C.
Angel J.
Anthony P.
Anthony M.
Caleb
Caleb E.
Corey C.
Cristina  P.
Emmaylou C.
Estefania
Grant T.
James L.
Jaylin P.
Justin C.
Kristin
Luis C.
Macey-Kate M.
Max B.
Nathaniel M.
Nichols D.
Robert F.
Sania A.
Xantha M.
Zach O.
Anthony U.
Austin J.
Debbie
Eric H.
Gavin F.
Joseph M.
Kate D.
Kelly D.
Kermitt T.
Maximus B.
Nicholas M.
Noel M.
Tille
Alma E.
Angelica T.
Brittany H.
Elliott S.
Erum K.
Ethan
Jennifer D.
Jordan L.
Josh
Justin L.
Kael F.
Kevin K.
Malachi B.
Kurt M.
Margaret O.
Michael T.
Montanna R.
Olivia K.
Sadie H.
Taliah
Anthony T.
Ava M.
Courtney A.
Garrett D.
Baby Girl R.
Harrison W.
Janna T.
Katie
Kayla
Lauren R.
Paige P.
Rebecca S.
Adam G.
Andrew A.
Andy B.
Baby Boy H.
Brittany W.
Eduardo P.
Brittany H.
Jordan H.
Katia S.
Kobe T.
Laney H.
Marianda M.
Brittany B.
Daniel S.
Dylan
Emma P.
Jamia F.
Kelly M.
Nyanjau M.
Quentin
Sarah C.
Sophia L.
Thomas S.
Tricia H.
Witt
Aaron F.
Adrain O.
Amber F.
Brogan A.
Donte B.
Ed K.
Baby Girl F.
Jack C.
Justin C.
Kiara F.
Nicholas S.
Olivia H.
Pat B.
Carlos F.
Caylin S.
Kaitlin P.
Kelly D.
Lisa V.
Travis S.
Trevor S.
Kenneth D.
Dana M.
Courntey S.
Crystal G.
Jaslyn
Madeline F.
Mallory H.
Michael S.
Ryan M.
Samantha
Sara N.
Shana
Susie T.
Taylor W.
Tony P.
Coleby M.
Jamie J.
Jennifer J.
Logan B.
Matthew A.
April S.
Cynthia R.
Landon T.
Andrew G.
Gary G.
Adam S.
Alex M.
Matt
Allison S.
Alex Z.
Ben G.
Matthew A.
Gus David M.
Susan P.
Tyler J.
Joyce S.
Christine A.
Lauren J.
Ryan M.
Joan B.
Kalie D.
Andrea W.
Natalie D.
Paul D.
Chuck A.
Jennifer J.
Baby Boy
Tyshera W.
Adam W.
John R.
Michael H.
Adrian I.
Simon E.
Debra H.
Irene C.
Christina C.
Avin B.
Denise G.
Jeffery G.
Michelle C.
Sean P.
Caroline F.
Mike
Jay
Katie
Kerry W.
Michael W.
Trevor L.
Drake F.
Xantha M.
Gabe W.