Garrett's House is dedicated to the support, advice, and education of a genetic skin condition called Epidermolysis Bullosa or EB for short. Currently there is no cure or effective treatment for EB. Please take a moment to learn about EB, and how you can support others who struggle with EB everyday. Garrett's House also honors the memory of those who lost their brave fight against EB. Please check out the Garden of Angel to learn more about the precious butterfly angels.

December 15, 2010

EB in the News


Patient 13 is coming home!
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EB on TV

There will be a special on TLC tonight about EB.  It's called 'My Skin is Killing Me' and will feature 5 year old Payton, who is the 13th patient to undergo a bone marrow transplant in the hopes of curing his EB.


It is on today, December 15th at 8pm (est)

You can read about it on TLC's web site here
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Bone Marrow Tranplant Patient #15

you can follow Charlie's journey and progress here
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December 8, 2010

EB Butterfly Reunion

For those who haven't heard, during the weekend of February 11-13, 2011, befriend EB will be hosting the first ever EB Butterfly Reunion! It will be held at Universal Studios in Orlando Florida. The deadline to request tickets is December 27, 2010. Each family who registers will receive 3 free passes and have the opportunity to purchase additional tickets at the same discounted price we are getting them for! For more info on the event, tickets and hotel info, please visit the web site:

 

http://ebbutterflyreunion.com/index.html

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December 6, 2010

Happy Birthday Garrett!!!



HAPPY 6th BIRTHDAY GARRETT!!!
We love and miss you very much!!!

you can read about his birthday celebration here
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