EB Awareness Week: In Loving Memory

It's National EB Awareness Week and today i'd like to honor and remember those who are no longer with us after their brave fight against EB.

Shannon P.
Ryan S.
Owen P.
Labrea
Heaven T.
Annabella R.
Abbi W.
Wesley S.
Leah T.
Baby Girl A.
Baby Boy B.
Braiden B.
Craig W.
Emberly P.
Gabriel V.
Gage M.
Grace P.
Jameson S.
Jayden I.
Landon S.
Lee L.
Lucy N.
William C.
Addison J.
Alex H.
Brandy K.
Braxton H.
Brida H.
Bursa
Derek J.
Devin R.
Emma M.
Giovanni W.
Jacob J.
Jacob L.
James U.
Jesse W.
Kara B.
Kaylee
Kyle O.
Le Andre S.
Matthew
Megan H.
Mia H.
Owen D.
Ryland B.
Sarah M.
Tabitha N.
Zach O.
Allie R.
Andrew C.
Angel J.
Anthony P.
Anthony M.
Caleb
Caleb E.
Corey C.
Cristina  P.
Emmaylou C.
Estefania
Grant T.
James L.
Jaylin P.
Justin C.
Kristin
Luis C.
Macey-Kate M.
Max B.
Nathaniel M.
Nichols D.
Robert F.
Sania A.
Xantha M.
Zach O.
Anthony U.
Austin J.
Debbie
Eric H.
Gavin F.
Joseph M.
Kate D.
Kelly D.
Kermitt T.
Maximus B.
Nicholas M.
Noel M.
Tille
Alma E.
Angelica T.
Brittany H.
Elliott S.
Erum K.
Ethan
Jennifer D.
Jordan L.
Josh
Justin L.
Kael F.
Kevin K.
Malachi B.
Kurt M.
Margaret O.
Michael T.
Montanna R.
Olivia K.
Sadie H.
Taliah
Anthony T.
Ava M.
Courtney A.
Garrett D.
Baby Girl R.
Harrison W.
Janna T.
Katie
Kayla
Lauren R.
Paige P.
Rebecca S.
Adam G.
Andrew A.
Andy B.
Baby Boy H.
Brittany W.
Eduardo P.
Brittany H.
Jordan H.
Katia S.
Kobe T.
Laney H.
Marianda M.
Brittany B.
Daniel S.
Dylan
Emma P.
Jamia F.
Kelly M.
Nyanjau M.
Quentin
Sarah C.
Sophia L.
Thomas S.
Tricia H.
Witt
Aaron F.
Adrain O.
Amber F.
Brogan A.
Donte B.
Ed K.
Baby Girl F.
Jack C.
Justin C.
Kiara F.
Nicholas S.
Olivia H.
Pat B.
Carlos F.
Caylin S.
Kaitlin P.
Kelly D.
Lisa V.
Travis S.
Trevor S.
Kenneth D.
Dana M.
Courntey S.
Crystal G.
Jaslyn
Madeline F.
Mallory H.
Michael S.
Ryan M.
Samantha
Sara N.
Shana
Susie T.
Taylor W.
Tony P.
Coleby M.
Jamie J.
Jennifer J.
Logan B.
Matthew A.
April S.
Cynthia R.
Landon T.
Andrew G.
Gary G.
Adam S.
Alex M.
Matt
Allison S.
Alex Z.
Ben G.
Matthew A.
Gus David M.
Susan P.
Tyler J.
Joyce S.
Christine A.
Lauren J.
Ryan M.
Joan B.
Kalie D.
Andrea W.
Natalie D.
Paul D.
Chuck A.
Jennifer J.
Baby Boy
Tyshera W.
Adam W.
John R.
Michael H.
Adrian I.
Simon E.
Debra H.
Irene C.
Christina C.
Avin B.
Denise G.
Jeffery G.
Michelle C.
Sean P.
Caroline F.
Mike
Jay
Katie
Kerry W.
Michael W.
Trevor L.
Drake F.
Xantha M.
Gabe W.

EB Awareness Week

Thank to Tripp's mom who allowed people to borrow this from her blog:)

Bella's Memorial Service

For those who can not be there but would like to "attend", here you go!


Anabella Ringgold's Memorial service in Como Park, MN in the Enchanted Garden. The memorial service will take place on Wednesday October 20, 2010 at 4pm Central Time (in MN) and be broadcast live on this channel

In loving Memory: Anabella Claire Ringgold {2009-2010}

Rest in Peace Bella

Heaven has a new butterfly angel...Bella Ringgold, age 1 year 4 months and 15 days, got her wings yesterday after braving enduring a bone marrow transplant to try and save her life. 

You can read her journey here