EB Awareness Week

Thank to Tripp's mom who allowed people to borrow this from her blog:)

Bella's Memorial Service

For those who can not be there but would like to "attend", here you go!


Anabella Ringgold's Memorial service in Como Park, MN in the Enchanted Garden. The memorial service will take place on Wednesday October 20, 2010 at 4pm Central Time (in MN) and be broadcast live on this channel

In loving Memory: Anabella Claire Ringgold {2009-2010}

Rest in Peace Bella

Heaven has a new butterfly angel...Bella Ringgold, age 1 year 4 months and 15 days, got her wings yesterday after braving enduring a bone marrow transplant to try and save her life. 

You can read her journey here

EB In the News: 10/6/2010

Despite genetic disease that causes his skin to peel off, Charlie Knuth, 4, 

of Darboy, is anything but fragile