The EB Nurse Web Site EB Research Partnership   The EB Public Lounge on Facebook: a support group for those with EB and their fam...

In Loving Memory.................... Hello everyone my name is Garrett. I was born on December 6, 2004 at 12:32pm and became an EB a...

  4th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held from 6:30-10:30 pm on April 22, 2010 at Park Tavern in Midt...

In Memory of Anthony Lee Postell Jr,  as told by his Grandmother,  Taunya M. Mendes "His father and I went to the cemetary to choose h...

Day-to-Day care of a baby with EB  This will be an ongoing list as I think of other things to add or if you are the parent of an EB ch...