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April 14, 2010

On-Line Support

The EB Nurse Web Site


EB Research Partnership

 
The EB Public Lounge on Facebook: a support group for those with EB and their families 
 
The EB Private Lounge on Facebook: a support group for only those with EB and their parents. 


DebRA: Dystropic Epidermolysis Bullosa Research of America: the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families.  They also offer their own social media platform called EB Connect.


The EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure.


Befriend EB: making life bearable


Other Useful Links


AdaptHealth: A wonderful wound care product supplier!!

 
The company that makes Mepitel and Mepliex products.


On-line Textbook of Dermatology


International EB Forum

DebRA of the Netherlands

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