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February 20, 2013

EB in the News

There have many many EB related news stories recently!


Federal lawsuit filed against Golden Corral restaurant in Michigan over Disabilities Act violation


 SI Parents Fight for Student With Disorder


Phoenix girl born with tough spirit, delicate skin from 'butterfly disease'

Brave 3-Year-Old Girl’s Skin Blisters At Every Touch 

Benefits and fundraisers set for local girls

 

Purple rays of hope for Windham 3-year-old


Slightest touch leads to raw blisters for 7-year-old girl



 



And finally, please take a moment to meet sweet baby Katelyn.  She was born in January and has a rare form of Junctional EB called JEB-PA.  Unfortunately she isn't doing well and no one is sure how much time she has left.  Please pray for her family during this uncertain time.  

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