Normally I would go in great depth and detail when it comes to EB statistics, however, I have had many of my ideas and posts "taken...

Aquaphor is probably the #1 ointment used among many with EB.  We don't use Aquaphor for a variety of reasons. And because of that I get...

This post is dedicated to  Inez Elizabeth Raquel Ontiveros Jaime who lost her battle to EB Simplex while I was composing this post.   When ...

Junctional Epidermolysis Bullosa is an autosomal recessive disorder.  The most prominent characteristic is the lack of tooth enamel which ef...