I didn't have time to blog yesterday because I was busy working on my final blog post.  And I wasn't sure I would get time today eit...

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Today I will be sharing some pictures that show the reality of having EB and being a toddler :-) These are Joey's feet.  All the woun...

Today has been one of those days where I had every intention of getting a lot accomplished but unfortunately life had other plans and I go...

There are many kids with EB who have a g-tube in their stomach to make eating much easier.  Joey got one when he was 3 weeks old.  Most kid...