*author note..I understand these types of topics are tough to talk about.  It not something people want to think about and hope if they...

Keeping the bandages on the legs from sliding down has always been a challenge for many with EB.   This is how we keep them to stay up. ...

After Garrett was born we received  a care package in the mail and in that package was a teddy bear.  I didn't give it too much thought ...

March has been a rough, rough month for the EB community.  On March 15, a little boy named Harry from England died of complications from P...

Kale : a green leafy veggie unknown to me until a few months ago!  I heard many good things about it so I got some to make baby food out of ...