The purpose of this post is to give the family, friends and followers of baby Easton an idea of what life is like with severe EB Simplex.  ...

EB Simplex Dowling Meara is the form of EB that my family and I have.  I wanted to do two post on EBS-DM, one about the medical aspect of it...

I have a HUGE goal of doing a new up-to-date series on EB topics.  Not exactly sure how often I will get time but my goal is one post a wee...

I have been wanting to do a post (with pictures) on how we do dressing changes to give other EB families ideas for their own set up. ...

This is a post for the family members and friends of those who have a baby or child with EB. When you have a loved one gives birth (o...