Take a moment and meet Jackson!   And then go here to learn how you can help save him! 

What: Praying for Ava Rose benefit When: Monday, March 19, 7 to 11 p.m. Where: Kilcoyne's, 129 S. Main Ave., West Scranton, PA Detail...

Check out this site I stumbled upon tonight.  I didn't know her personally but remember her mom from the EB groups many years ago.

This can be printed out on colored paper and hung above your child's bed or on the door to remind the medical staff to enter with care. ...

  S. Ind. 8-month-old continues to fight rare skin disease with help from community.  You can read about baby Brody here