This can be printed out on colored paper and hung above your child's bed or on the door to remind the medical staff to enter with care. ...

  S. Ind. 8-month-old continues to fight rare skin disease with help from community.  You can read about baby Brody here

A very interesting article about the causes of pain  in those with severe EB. Scientists Discover Cause Of Severe Pain Experienced By Pat...

Garrett would have been 7 years old on December 6th.  VERY hard to believe its been 7 years already.  Some days it still feels like a life t...