S. Ind. 8-month-old continues to fight rare skin disease with help from community.  You can read about baby Brody here

A very interesting article about the causes of pain  in those with severe EB. Scientists Discover Cause Of Severe Pain Experienced By Pat...

Garrett would have been 7 years old on December 6th.  VERY hard to believe its been 7 years already.  Some days it still feels like a life t...

I recently did two blog post on my other blog  on how we do dressing changes with Joey. You can find part one here and part two here