Patient 13 is coming home!

There will be a special on TLC tonight about EB.  It's called 'My Skin is Killing Me' and will feature 5 year old Payton , who ...

you can follow Charlie's journey and progress here

For those who haven't heard, during the weekend of February 11-13, 2011, befriend EB will be hosting the first ever EB Butterfly Reunion...

HAPPY 6th BIRTHDAY GARRETT!!! We love and miss you very much!!! you can read about his birthday celebration here