KENDALL'S 1ST ANNUAL BUTTERFLY WALK/RUN sATURDAY, sEPTEMBER 18TH Community Park, New Albany, IN 10:00 AM

New Hope For Local Girl's Rare Disease Dylan Parr won't be welcome at hospital Brave ' butterfly boy ' loses battle  agai...

Ezra's EB Fundraiser   Date: Sunday, August 8, 2010 at 11:00am Place: Mane Stop Hair Salon 823 East Brandon Brandon, fl 33511-5408 (...

*NOTE- this is no medical advice.  This is just the recommendation of one EB Clinic and its doctors in January of 2024.  Each person with EB...

For those who have a child who needs to take iron supplements you know how hard it can be to get them to take it!  Another EB mom found a gr...