Sacramento Baby  With Rare Skin Disorder

Today I was speaking to another EB mom on the phone who lives near me and who sadly lost her baby to EB about 14 months ago.  We were talki...

I know those aren't two words you hear in the same sentence; good and EB.  But there is some good that comes from EB.  The biggest one; ...

Due to high demand, DebRA’s room block at the Hyatt Regency has SOLD OUT . The entire hotel is also fully booked during the week of the Pati...

Hello Everyone, The following information is regarding recent updates to the 2010 Patient Care Conference agenda. The Agenda for the Patie...