Owen Porche benefit set for Sunday an event in memory of a brave little baby who lost his battle to EB when he was just 41 days old.

For those attending the patient care conference,  you can find the agenda here

 Over 5 years ago I set out on a mission to help other EB families who recently had a child with EB.  If I could just help(prevent) one fa...

A handsome little angel named Jameson Daylon: His journey towards a cure Keric: the 4th EB patient to receive the bone marrow transplan...