Info for the one at the University of Minnesota can be found here
(this page is a work in progress and as I locate/learn of more clinical trials I will update this page)
Here is the list of web sites for some of the kids who have undergone or are currently undergoing the transplant
#2 Sarah
#2 Sarah
#4 Keric
#5 Hannah
#6 Fallyn
#7 Samantha
#8 Rafaella
#9 McKenzie
#10 EJ
(sadly EJ passed away from complications in 2011)
#11 Daylon
The first Junctional baby to go through the transplant
#12 Bella
(sadly Bella passed away from complication in October 2010)
#13 Payton
#14 Elle
(sadly Elle passed away from complications in November 2010)
#15 Charlie
#16
#17 Nicholas
#18 Hailey
# 19 Quinn
(sadly Quinn passed away in May 2012)
#20 Sahar
those in-line to be transplanted:
#21 Jackson
#11 Daylon
The first Junctional baby to go through the transplant
#12 Bella
(sadly Bella passed away from complication in October 2010)
#13 Payton
#14 Elle
(sadly Elle passed away from complications in November 2010)
#15 Charlie
#16
#17 Nicholas
#18 Hailey
# 19 Quinn
(sadly Quinn passed away in May 2012)
#20 Sahar
those in-line to be transplanted:
#21 Jackson