RIP: Lexus M. Johnson

Lexi Johnson lost her battle to EB on July 5th, 2011.  

She was 15.  

 You can read a wonderful article written about her here

EB in the News

Skate park dream comes true for man with rare skin disease

Community Spurs To Action For Toddler With Rare Skin Condition

 

Jackson Gabriel Foundation Awards a $50,000 Grant In Support of Dr. Jakub Tolar's Research To Treat And Cure Epidermolysis Bullosa

 

Butterfly children offered glimmer of hope