EB in the News

Patient 13 is coming home!

EB on TV

There will be a special on TLC tonight about EB.  It's called 'My Skin is Killing Me' and will feature 5 year old Payton, who is the 13th patient to undergo a bone marrow transplant in the hopes of curing his EB.


It is on today, December 15th at 8pm (est)

You can read about it on TLC's web site here

Bone Marrow Tranplant Patient #15

you can follow Charlie's journey and progress here